CB’s neck odor has persisted. I mentioned this in an earlier post from the fall, Weekly update on CB late October 2015. We thought it was related to starting the L-Carnitine; however, that was removed from his supplement schedule 3 weeks ago. The smell only comes from his neck and smells something like bo or a fishy smell. It just depends on who you ask. You only smell it if you are within inches of his neck, fortunately. The other interesting thing is that the smell goes away during the bath, and resumes within minutes afterwards. We have decided to greatly reduce CB’s supplement intake for the moment to see if this might be a sulfation issue caused by the b vitamins in some of the supplements. We also thought he could use a break from the fish oil since he has taken that without a break for almost 1. 5 years. CB’s holistic practitioner wants him to start Allergy Rescue as he thinks CB’s shiners are related to allergies. He also wants him to start digestive enzymes to help with the fat absorption issue I mentioned in my last post Parasite Detox with Humaworm. The current plan is to wait a week or so after the parasite detox has completed and start adding some of the supplements into the schedule one at a time. Fingers crossed, we figure out the neck odor issue.
We also decided some months back to move forward with the 23andMe test. CB’s holistic practitioner highly recommended it and given that we now know CB has a genetic disorder, we thought the test could provide some additional information. It is possible, it could help us to better decide what supplements are needed and what diet modifications to make. Well, the trick is that the test requires the client to fill a portion of the tube with spit. For an adult, 23andMe mentions that it could take 3-5 minutes to generate enough spit to fill it. So as you can tell, a large amount of spit is needed. Well, we thought lucky us! Our son loves to spit, this won’t be too hard. I will add that I didn’t realize initially how much spit was required. Once I saw the amount required, I thought this is impossible. We will have to get a refund b/c there is no way he will even provide the needed amount in 2 days. I called 23andMe and they said I could pop the seal on the top lid, which will release a stabilizing liquid. Generally, you don’t release the liquid until you have enough spit in the tube. You have to be very careful not to loose any of the stabilizing liquid. However, they said, we can go ahead and release the liquid and CB can spit in it for months and months, like 6 months. We have been working on it for about a month, and haven’t even gotten 1/5th of the way. I am optimistic we will get there though :).
I think the reason CB does not want to spit into it, even though he spits more than 20x a day (no exaggeration), is b/c it is on our terms. We are asking him to do it. CB has always been a tough nut to crack. Motivating him is a continual challenge and this is the perfect example. We have a test we need done. The test requires CB to do one of his favorite things to do, spit, and as a reward for filling it up, he will get to go to the store and pick out any car he wants. Cars by the way are his favorite, no question, thing in life. This sounds like a win/win to me. CB doesn’t see it that way and most days doesn’t want to spit in the tube even once.