Tag Archive: apraxia

CB – Almost 5

So, it has been a year since I wrote the original bio for CB. How is he doing now? What progress has he seen? Well, I thought it would be good for me to explore these ideas. CB has worked so hard this year and has progressed beautifully. He is still our happy, silly little boy. He remains just as curious as before and can find humor in just about any situation. Making funny sounds, screaming, and saying words that he finds humorous entertains him to no end. Asking questions every few minutes (if not more often) is still one of his traits. If he is not playing with his cars, you can often find him playing outside either digging in the dirt or exploring our backyard. He loves water, whether it be swimming in it or splashing it in swim class, playing with it while washing hands, pouring it out of his drink, pouring it from one container to another, or just pouring it out of anything.

His speech has improved tremendously. He can express himself in complete, short sentences, although he will still resort to phrases a good bit of the time. His speech therapists are primarily working on articulation, vocabulary expansion, and usage, sentence length expansion, and focus. CB continues to spit or hit when he doesn’t want to do something. Fortunately, he uses his words more often though. A huge step has been to expand his automatic response of “No” to just about any question to include “Ok”, “Yes”, silence, and sometimes a longer reply. He was in the habit of responding No to anything asked of him. It was his default response. If you waited a few seconds, he would many times comply or say another response. I think changing this has helped him also change his viewpoint a little. CB has gone through a stuttering phase. This came about when he started speaking in longer phrases. His speech therapists mention that they think this is due his desire to say something before having it planned out how to say it. He still does it some and I just ask him to take a deep breathe or to slow down. This usually works and he can start getting his thoughts out.

Fine and gross motor tasks still remain a big challenge for CB. He is currently working on writing his letters in pre-k and has started the “Handwriting without Tears” curriculum at OT. It only takes up about 5-8 minutes of OT. Sitting still, holding the pencil correctly, understanding where to start writing, understanding where to hold his body and head in relation to the work he is doing, planning the next stroke, and understanding where he should put his visual focus adds up to a very challenging set of tasks for CB. The hope is that by practicing now will help him achieve more success once he is in kindergarten. CB’s strength has noticeably improved. This has enabled him to endure and enjoy activities in OT like swinging in prone position/superman pose while playing games for 8+ minutes. I haven’t seen this translate into longer endurance during activities like running around and chase or increase his running speed. CB is still the slowest runner of his peers and just not often play games involving chase outside. He can climb higher, jump 1-2 ft down to another surface, peddle a trike, and jump over a low object. He is starting to catch a ball a little better. His visual tracking is definitely improving. You will notice above that I mention him swinging. For the swings at the park, he will now tolerate sitting in the swing with a little movement for about 30 seconds – 2 minutes. He is still not comfortable with that specific movement. (more…)

Walk for Children with Apraxia of Speech

Our local Childhood Apraxia of Speech walk was this past weekend!! It was such a success. We had a wonderful turnout of family, friends, and therapists to support CB! He absolutely loved the attention and the fact that all these people came out just for him. It was also so comforting that we were able to talk briefly about the meaning of the walk and why our friends and family were coming out to the walk for CB. We told him that they were coming to show their support for all the hard work he has spent this past year working on making his sounds and words. We mentioned that other kids were being recognized too for all their hard work. I mentioned that he has Apraxia and that it makes it a little harder for him to say words and make sounds. This is honestly the first time I have really told him. We have used the word Apraxia before but never provided any info around it. Also, in the past, CB would not have tolerated even hearing about it. His focus and interest was isolated to very concrete, tangible concepts that either needed to be in our immediate presence or something would be in our immediate presence within minutes. If we wanted to describe something, he would listen to 1-2 sentences. If he wasn’t interested, he would sometimes check out a few words in. As of late, we can talk about things that are weeks to months out, and he can understand that and get excited. We have been talking about Halloween with CB and HB for the last few weeks. They are both so pumped. It is awesome that it is still 2.5 weeks away and the interest and excitement has remained. Ok, I guess I will get off my tangent. We invited friends and family back to our house to continue the celebration. I hid CB’s cars the night before and the interesting thing is that he didn’t even ask about them till 1-2 days later. He typically has to have his hands on his cars within reach. Well, by hiding the cars, I think it helped keep CB more engaged. He played with his friends the whole time they were there!! It was such a special day for CB. Oh, I love that boy!!

The Childhood Apraxia of Speech walk helps raise funds for CASANA (Childhood Apraxia of Speech Association of North America). They are a great resource and have helped my family a lot on our journey. You can check out more about them at http://www.apraxia-kids.org/about-casana/.

Dyspraxic/Apraxic Inconsistencies

One of the common characteristics of someone with Dyspraxia/Apraxia is the continual inconsistencies that exist in many to most parts of their lives. With CB, this is not only apparent with his speech production, but his word retrieval, short & long term memory, processing speed, fine & gross motor skills, tracking speed, ability to sense the need to pee prior to actually peeing, and other areas. When all cylinders are firing and CB is on the top of his game, many people might not even notice CB’s differences, other than his limited speech. When things are off, then everything is just plain hard for CB, all the wrong words come out, getting his body to move in the desired way is quite difficult, CB will get stuck in repetitive patterns (like just saying “No” over and over and over.) and CB will even be very reluctant to do things he has “mostly mastered” in the past. For most days, CB has many struggles and the easiest thing can seem so hard for him. For example, CB has been putting his own underwear on for 7 months and still asks us to help on most days.

I have some tendencies on the dyspraxic side including issues with word retrieval, processing information at a slower pace, walking into things, tripping over nothing, and performing tasks at a slower pace. When I am tired or stressed, it is basically impossible for me to say every word in every sentence correct. I will just skip over the word I can’t think of or get stuck where I just say the wrong word each time even after being corrected a time or two. I feel that it is almost impossible for me to speak 100% correct at those times and just hope for understanding from those around me. Now I am just trying to imagine what it would be like if this feeling of impossibility existed within me for everyday tasks on a consistent basis. What would others feel towards me? How would I feel about myself? How would I feel about trying new things? Would I feel that people feel sorry for me? Would I feel less than others? I think I need to remind myself of this often when I am not being as understanding as I should with CB. I also need to continually ask “What would help me to feel more positive about myself?” and to try to always find ways to help CB in this area.

For CB, one interesting change is that his vowel sounds have been quite consistent for the past 6 months or so. This same issue still exists for some consonant sounds, but it seems like the more he practices the more consistent he is becoming with his consonant sounds, as well. It is interesting b/c I am wondering how does something move from the inconsistent to the consistent and stay consistent for the dyspraxic person? Does enough practice make the neural pathways for certain sounds, movements, words, etc. so defined that they become a consistent part of the dyspraxic’s mastered capabilities? Can I hope that CB will not always struggle with so many parts of his life? I know it is realistic for him to be able to perform many everyday tasks without thought, but will most things actually become “easy” for him? Will he always struggle with certain fine motor tasks like writing or being able to follow the lesson in class or easily communicating to even his closest friends or physically keeping up with his friends?

So I am currently struggling with the knowledge that CB needs PRACTICE, PRACTICE, PRACTICE and with the knowledge that CB also still just needs to be a kid. How do you ensure to get enough of everything in but always still allow for CB to have his childhood? I know I am not doing enough at home right now, especially since it is summer. However, I hope to create more of a balance. I need more strategies for having play actually be PRACTICE, PRACTICE, PRACTICE but hidden so CB is not aware. My next steps are to get more iPad apps that are targeted towards speech production and concepts that CB needs to work on. So, I know I don’t have the answers, but asking these questions helps put me on the path to getting the info I need to take the next step.

Side Note about Health: CB has what I think is a yeast infection. He got a chigger bite (at least this is what we think) on his penis. About a week later, he developed the ring around his anus. In the past, this ring has indicated a yeast infection. I have been treating the yeast infection for the last 5 days with no progress. I have treated it with coconut oil, some Eden’s salve, and applied some hydrocortisone to help with the itching. Hopefully, we will see some progress or I will have to take him in to the Dr. We are out of state right now, so I have been hesitant.